- There are people who live tweet their medication usage to bring awareness to their conditions.
- There are people who write insightful posts about what it's like to be harassed for using their handicapped placard, even though they don't have a wheelchair. Actually, the list of how blogs can be used to raise awareness is astounding.
- Facebook/Twitter campaigns can be used to raise funds and awareness.
- There are people who join private Facebook groups to find support, understanding, and answers to their questions.
- No matter if it is Twitter, the comment section of a blog, Instagram, Facebook, email, or something else that I'm leaving out, there are ways to connect with other patients.
- When someone is isolated, it can feel like the only way to stay connected to the world is through social media.
- I will admit, being tethered to phones, tablets, and laptops is exhausting.
- Social media friends are great, yet, they are not substitutes for real friends. The level of comfort you feel from behind the screen can keep you isolated, if you mentally struggle with getting out and making friends.
- Envy. It's easy to see pictures everywhere of the fabulous lives of non-ill people. Envy can eat you up.
- Seeing peers living the life you thought you would have before chronic illness hit can hurt. Even if you're normally fine, everyone has a bad day.
- Not everything requires an immediate response. Take time for yourself.
- Categorize/Organize your email for newsletters to read later, emails to respond to when you are well, and delete what is not relevant.
- We all can agree that people only post what they want people to see. They aren't posting pictures of themselves crying and sad, just like you don't either. >>>However, if that is still hard to remember, it's easy to create a Facebook page that you use only for joining private support groups and liking/following advocacy groups that inspire you. >>>Also, there is a new app for your phone that allows you to JUST go to your Facebook groups. I you turn the notifications on or off.
- Clear out your blog feed. If looking at fabulous fashion blogs makes you long for the days that you used to wear high heels and blazers to your corporate job, and then go out for drinks (day to night outfits, anyone?) take them out of your feed. Only scroll through blogs that inspire you to live a more fulfilling life. If someone writes consistently depressing content, take that out, too. Just read blogs that make you feel good about yourself.
- Instagram: You can delete it. However, I love it. It's one of my favorites! I have a personal account where I follow my real life friends (or I should say people that were my friends at one point in my life), but I don't even log in anymore. I have a blog account where I only follow people who inspire me. I don't follow fashion bloggers. I follow the bloggers that I read. I follow fellow chronically ill people who post funny pictures poking fun at themselves or who are raising awareness for their condition. I find that they are like-minded and inspiring.
- Twitter: If you scroll through your feed and someone is non-stop tweeting about their vacations or anything that you don't like, you don't have to follow them. You can also mute them, if you don't want to unfollow for some reason.