I'm Sarah! I love to read, write, and create. My blog is to share my passion for life while living with chronic pain. I hope you'll enjoy this journey and a good book with me!
I haven't had a chance to update my domain to match my blog name, yet, but I'm working on making it all come together!
Visiting from a search engine? New here? This is what you need to know:
I'm not doing well, health-wise, so I have not been updating or writing as much as I would like.
However, I am trying to write once or twice a week!
Also, if you have a problem with the Le Tote post that I wrote two years ago, I'm sorry. It's the Internet.
Most Popular Posts
2017 Reading Challenge
- Le Tote: A Very Honest Review
- Love Jane Austen? 10 More Books to Read!
- How to Deal with One Sided Friendships
- 9 Ways to Ease Your Cervical Dystonia Pain
- My Dogs Love this Amazing Alternative to Greenies
- 10 Ways to be an Amazing Friend to Chronically Ill People
- About Me
- But You Don’t Look Sick: An Open Letter
When I was 23, I was diagnosed with Cervical Dystonia, also known as Spasmodic Torticollis. Per the Dystonia Foundation, Cervical Dystonia is a focal dystonia that affects the neck and sometimes the shoulders. Symptoms include involuntary contracting of the neck muscles, causing abnormal movements and awkward posture of the head and neck. The movements may be sustained, jerky, or a combination. Cervical dystonia may result in considerable pain and discomfort. Treatments may include oral medications, botulinum toxin injections, surgery, and complementary therapies. I have sustained contractions on the right side of my neck and shoulder, resulting in tension migraines and loss of motion. Botox shots have provided considerable relief, but the symptoms are not always controlled. Fortunately, there is a ton of information available online. However, I couldn't find much information about young people suffering from the condition. Honestly, I am not hopeful for a cure, but I do believe that treatments are getting better and will continue to get better. Before I was diagnosed, I had no idea that Cervical Dystonia, or even Dystonia existed. I want to use my blog to raise awareness about the condition and treatment options. It felt like a death sentence when I was diagnosed. I knew it could be treated, but I was in so much pain and agony that I couldn't envision a brighter future. It was hard living from shot cycle to shot cycle. Some sets of shots lasted 10 weeks, some would be useless after 4 weeks, even though I had to wait 12 weeks for more shots. With the incredible support of friends and family, I now live a much fuller life. I can see good things in the future. It isn't that having the neck condition doesn't complicate everything from work schedules to sleeping, but things are getting better. If you are a young person, or any person, with Cervical Dystonia, I would love to hear from you and share your experiences. It is incredibly lonely because I've never met another person with this condition. My doctors have been less than compassionate, even though they mean well. There are several ways to contact me on the right side of the screen. Please reach out! here to request to join the group. They usually let you in within a day or so. The closed nature of the group prevents your posts from showing up all over everyone else's news feeds!