Fitbit: Moving on for More Endurance

Fitbit

So, I went on a short trip to New Orleans before Christmas this year. However, the stress of packing, flying, and getting to the hotel was painful. So, by the time we walked a little over half a mile to the tourist area of the city, even my abs were on fire!

My in-laws have a timeshare and are letting us use the one in NYC this spring. This is a trip of a lifetime for me. However, I don’t want to ruin my next trip by crying when the restaurant for dinner is too far away. I want to see everything there that I want to see. I only saw a fraction of what I wanted to see in New Orleans because I needed to lay down. I was able to see my old friend, take a tour around Jackson Square, and go out for a fancy dinner. I missed getting to ride on the trolley, I didn’t get to go where the locals listen to jazz, I didn’t get to stay up late.

While my next trip is a few month away, I decided to go slowly and build up my stamina. If you want to be my friend on Fitbit, add backtocarolinablog@gmail.com – I love to see what other people are doing! I started with 100 steps my first day and I’ve added at least 100 steps each day. One day, I got close to 2k steps, when we went out to dinner and saw a movie, but another night, after a poor night of sleep I may only hit 500 steps. As of writing, my goal for today is a solid 500 steps. If I add 100 steps each day, by Sunday, January the 29, I should be walking 1400 steps a day.

My goal is to show myself grace–if I get up to 2k steps a day, but fall back to 500 steps, I won’t push myself to get right back to 2k. As long as I build endurance, I am winning.

In 2014, I used a Jawbone while I was working, and it helped me lose 30+ pounds! This time I just want to build up my core muscles and leg muscles. I wouldn’t mind dropping a few pounds.

And to get everything kicked off, I bought a new pair of running (aka WALKING) shoes and Superfeet inserts. I had been using the green inserts, but the people at Fleet Feet were super helpful and found inserts with the same support but they weren’t as thick, so I didn’t come sliding out of my shoes. If you aren’t familiar with Superfeet inserts, they are amazing. The green ones have the highest arch support.

asics dynaflyte womens

They shoes are NOT my favorite colors. I mean, what’s up with alllllll the crazy colors at the running store? However, I love the lightweight shoes. They make it super easy to have the support that I need.

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I ended up with the purple FitBit Alta. However, I’m not loving the purple band. If you have a Fitbit Alta, have you gotten replacement bands? Has anyone gotten the really big gold plated cuff? I’m thinking about it… I would just like something that looks nicer and doesn’t capture dirt within a week. I happened to have a purple manicure when I purchased this, but I don’t want to be stuck with the same nail polish color.

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So, as I write this, I’m far behind in my goal of 500 steps for today. So, I am going to hop off and get ready to accompany my husband to one of those office stores to get a new chair in order to get steps tonight!

Leave me your tips on getting in steps when you literally have nowhere to go (don’t have a job, don’t have many reasons to leave the house, etc.), add me as a friend on Fitbit by looking me up via email backtocarolinablog@gmail.com, and if you have any NYC travel tips, I’ll take those, too! Especially, I don’t want to dress like a tourist, but I need to stay cool and keep my arches supported. Shorts and Adias sneakers? Dresses and Adias sneakers?

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Categories: Uncategorized
Named of the Dragon: Susanna Kearsley Review


named of the dragon

named of the dragon book coverVerdict: Kearsley fans will pick it up!

Like other Kearsley novels, this one features a book agent who travels to another part of the country. In this case, the book agent follows her fun children’s book author to a remote part of the country where she partakes in Christmas activities with some other authors. However, things take an odd turn, as a next door neighbor, who is a widow and single mother, believes that her child is in danger and the danger is connected to the legend of Merlin.

Although there was no outright time travel, the main character Lyn, experiences odd dreams that are confirmed by weird interactions with a local playwright. Overall, it was very strange. At first, I was glad to have a Kearsley novel that wasn’t about the Jacobites, but overall, it was a strange plot. The characters were interesting, but I couldn’t wrap my head around the dreams of a sane character, the delusions of the single mother, and how the playwright knew how to decipher them in his own weird way. I wouldn’t recommend this novel. Like all Kearsley novels that I’ve read, there was a romance, which was interesting, but not as compelling as most.

I did read it fairly quickly because I wanted to know what happened, which is always a positive sign for me, but in the end, I couldn’t bring myself to give it more than two stars on Goodreads.

I scooped it up because it was a new Kearsley novel and I love her work, but I wouldn’t have read it, knowing what I know now.

Thank you to Netgalley for allowing me to review this novel.

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Categories: Uncategorized
Reading Challenge: Classics 2016

Happy new year! I thought that I’d start out with a book post, of course.

Last year, I rolled through my first 2/3 of the classics reading challenge, but as I fell sick, I didn’t continue to pursue the last few books. However, I am ready to redeem myself with this year’s Back to the Classics Challenge 2016!

back to the classics 2016 challenge

I’m also in the middle of my two year Classics Challenge, where I am reading 50 classic books by THIS Christmas Eve. You can join up any time. You can read my projected list of novels and learn more about joining here.

If you want to join the Back to the Classics Challenge 2016, click here for more information and the link up!

For this year’s classic’s challenge, these are my picks (picks are subject to change)!

Classic Book Picks:

A 19th Century Classic – any book published between 1800 and 1899.

The Warden, Anthony Trollope, published 1855.

A 20th Century Classic – any book published between 1900 and 1966.Just like last year, all books MUST have been published at least 50 years ago to qualify. The only exception is books written at least 50 years ago, but published later.

Bath Tangle, Georgette Heyer, 1955

A classic by a woman author.

Evelina or the History of a Young Lady’s Entrance into the World, Fanny Burney, 1778

A classic in translation. Any book originally written published in a language other than your native language. Feel free to read the book in your language or the original language.

Candide, Voltaire, 1759

A classic by a non-white author. Can be African-American, Asian, Latino, Native American, etc.

Lolita, Vladimir Nabokov, 1955

An adventure classic – can be fiction or non-fiction. Children’s classics like Treasure Island are acceptable in this category.

The Innocents Abroad, Mark Twain, 1875

A fantasy, science fiction, or dystopian classic. Dystopian could include classics like 1984, and children’s classics like The Hobbit are acceptable in this category also.

The Hobbit, J.R.R. Tolkien, 1937

A classic detective novel. It must include a detective, amateur or professional. This list of books from the Golden Age of Detective Fiction is a great starting point if you’re looking for ideas.

N or M?, Agatha Christie, 1941

A classic which includes the name of a place in the title. It can be the name of a house, a town, a street, etc. Examples include Bleak House, Main Street, The Belly of Paris, or The Vicar of Wakefield.

Washington Square, Henry James, 1880

A classic which has been banned or censored. If possible, please mention why this book was banned or censored in your review.

The Sun Also Rises, Ernest Hemmingway, 1926

Re-read a classic you read in school (high school or college). If it’s a book you loved, does it stand the test of time? If it’s a book you disliked, is it any better a second time around?

Persuasion, Jane Austen, 1817

This one is a big chore for me, since I hate rereading novels; however, I didn’t read Persuasion until Brit Lit II in college, so I’ve only read it once. Plus, Austen novels aren’t bad a second time!

A volume of classic short stories. This must be one complete volume, at least 8 short stories. It can be an anthology of stories by different authors, or all the stories can be by a single author. Children’s stories are acceptable in this category also.

The Adventures of Sherlock Holmes, Sir Arthur Conan Doyle, This audible novel includes 12 Stories: “A Scandal in Bohemia,” “The Red-Headed League,” “A Case of Identity,” “The Boscombe Valley Mystery,” “The Five Orange Pips,” “The Man with the Twisted Lip,” “The Adventure of the Blue Carbuncle,” “The Adventure of the Speckled Band,” “The Adventure of the Engineer’s Thumb,” “The Adventure of the Noble Bachelor,” “The Adventure of the Beryl Coronet,” and “The Adventure of the Copper Beeches.”

What are your thoughts? Any suggestions for better picks? What do you plan to read this year?

Don’t forget to add me as a Goodreads friend as I try to tackle 200, instead of 150 books this year!

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Categories: Reading Challenge, Uncategorized Tags: ,
The Lake House: Kate Morton Book Review

 

the lake house review

the lake house

Verdict: A must read for all Kate Morton fans!

The Lake House isn’t just for Kate Morton fans. Morton really increased the complexity and fell out of some of her predictable patterns that regular readers could easily figure out in advance during this novel. Overall, she stepped up her game. Anyone who love a fast paced, cold case mystery (although those two seem to be at odds, right?) will not be able to put this novel down.

The novel was extremely long, which makes is hard to summarize succinctly. Overall, the narrative jumps among generations of people during both world wars, the present, and times in between. The narrative focuses on a current detective and a retired detective. It focuses on a mystery writer and a missing baby. And that’s just the tip of the iceberg.

While there was a subplot or two that I would have loved to read more about, it would have required the almost 600 page tome to reach gigantic proportions, so I’m ok with the possible editing. I know that Morton has never written a sequel, but the main character, Sadie Sparrow, would make an excellent detective for a second novel, in my opinion. I found her to be a fascinating character who would have more to offer.

I think readers will agree that Morton brings numerous plots and subplots together, brilliantly, at the end, in a way that keeps the reader guessing right up until the main character herself pieces it together! It is a long, but brilliant masterpiece that won’t waste the time of fiction fans, mystery fans, or Kate Morton fans. In fact, it has to be the best Morton novel to date!

I cannot recommend the novel highly enough, if you like fiction. I couldn’t put it down. So, wait until you aren’t busy to read it!

You can check the novel out on Goodreads here to add it to your To Be Read list and you can add me as a friend on Goodreads here!

Thank you to Netgalley for allowing me to review this novel.

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Categories: Uncategorized
I’m a Really Bad Blogger…


Bad Blogger Update (1)
So, I haven’t really been blogging. I haven’t been using Co-Schedule for Twitter. I haven’t been reading much, either. However, I do love to snap a photo, so I’ve been keeping up on Instagram. So, don’t forget to follow along! Since I’ve been away, I thought that I would do a little round-up.

I know that it seems like I take a long break and do this a lot, but this where my health has left me right now. I sincerely miss the day of having so many post ideas, photos ready, and posts planned for each day. I miss sharing my feelings and ideas. I miss reading posts. I miss editing photos. I miss being inspired. I hope this “coffee date” round up will suffice until I can blog regularly again!

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At the beginning of the month, I went to Texas for a Cervical Dystonia conference. It was amazing! My husband learned how to tape my neck, which relieves a significant amount of pain, I connected with a ton of wonderful people, and finally, I got to visit with my dear, dear friend from college, and her husband (also a college friend) and her kids!

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I didn’t get to read as much as I wanted to read. I finished watching all of Angel and started several other TV shows. I keep running out. I’m going to have to watch Gilmore Girls soon! Right now, I’m watching the wildly historically inaccurate Reign.

reign

Before I started binge watching TV, I read the rest of the A Royal Spyness series. I think I am sensing a pattern!

royal spyness 2 royal spyness 1

Fall Frolic

Brian and I went to the Fall Frolic at our church. It hurt to get dressed and cleaned up, but it was worth it. I didn’t get to curl my hair, but the ponytail worked!

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Coloring:

I tried to take up coloring after I read that it was meditative and I hate sitting still. However, when I was younger, I hated coloring. I think it was because it hurt my hands. It hurt hands terribly this time, too. I had cramping and numbness within minutes, but it was addicting and fun. I have to set timers to make sure that I don’t hurt myself! Once I start something, I don’t quit!

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I picked up these nicer pencils in hope that they would ease my pain!

Fall is Here!

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We made s’mores!

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I updated the table for fall!

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South Carolina in the fall.

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My painting. Thank goodness for some man muscle!

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And the Fall foliage in North Carolina on the way to my doctor’s appointment.

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I got some fun stickers for my planner!

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We went to a deli and they stamped this as “paid.” I had to laugh a lot.

Fall Fashion/Some Selfies:

Well, I haven’t had my husband take any photos recently, so I had to take a some selfies. My favorite thing about the weather getting cooler is wearing Fall clothing! Vests, fuzzy socks, and leggings, oh my! It’s kind of funny because I don’t dress up often.

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Pardon the boxes in the back, but this sweater is THE BEST. It is an open, handkerchief-like cardigan, but you can button each side and close it up, making it look more dressy. It also has thumb-holes, which you can never beat. It’s made by Cuddl Duds, which I always associated with my mom’s long underwear growing up, so I was really happy with with purchase. It’s lightweight and amazing for layering. It also feels great with my plaid “jogger” pajama pants that you can just see at the bottom of the picture!

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This vest is my new favorite vest! I picked up a few this year, since I’ve lost such a substantial amount of weight that I went down three pants sizes… This one from Lands End is my favorite. It’s the perfect weight. I’m not sure why I chose pink, since I don’t own a ton of pink, but I think it will compliment all my other clothing well!

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My husband and I are showing off our shoes! These are some new favorites that I picked up. I always gravitate towards flats, but with my arch problems, something with a little bit of heel actually does a better job. As long as I won’t be doing a ton of standing or walking, these are supportive and stylish!

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This is the ultimate selfie. I did my hair one afternoon (I was trying to decide if I needed to get a haircut) before we went to our community group at church, but it turned out ok. So, I think I’ll let it grow for now! I like that I can get a real ponytail for my endless PT.

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This picture is a bit messy, like the rest of my life, but I had to share this fun and cozy sweater. It’s not as heavy as it looks (it’s from the Junior’s dept. so the weave is open and not super great), but it works. I figure that it’ll work for the season or two that I need it!
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Finally, this necklace was my favorite find of all. It’s a necklace that symbolizes a lot to me.

Dogs:

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Baby Molly passed away in August of last year, and I miss her every time I see a photo of her, but I also love her because without her, I never would have gotten my silly little ones!

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Categories: Uncategorized
What I Read Last Month: September 2015

What I Read September 2015

Well, I really didn’t read as much as I wanted to last month, plus this post is much later than I expected it to be! I only read a few, and by read, I mean listened to books! My symptoms are getting really bad, so I’m burning though TV shows and movies like crazy. If you’ve been following me on Instagram, you’ve seen that I went to a cervical dystonia conference at the beginning of October, so, the end of September was spent slowly packing and then watching more TV.

So, as my health deteriorates, I watch more TV and read less. I hope that October’s report will have a few more books. I am hoping to get better treatment soon.

Contemporary

The Sisters of Versailles

The Sisters of Versailles

Verdict: I was glad to read something other than British historical fiction…

I wrote an entire post, which you can read here!

Leaving Everything Most Loved

leaving everything

Verdict: Another great addition to this series

This novel won’t stand alone, but if you are a fan of this series, then I would recommend it!

The Rose Garden

the rose garden

Verdict: A different kind of time travel.

This novel was another Kearsley novel centered around the Jacobites (so far, both novels that I’ve read by her were written about that time period), but her twist on time travel made the romance novel suspenseful and fun.

We Never Asked for Wings

we never asked for wings

Verdict: For people who like good books.

I don’t write that verdict lightly. You can read my full review here!

Everybody Rise

everybody wise

Verdict: I cringed a lot.

I don’t know if the cringing was because the writing was really good, so I could feel the embarrassment for the character, or if the scenarios were like an I Love Lucy episode, minus the punch line. There was nothing funny about this book, but I did like the ending. A+ on the ending.

The Royal We

the royal we

Verdict: A lot more involved and complex than I thought it would be!

I really liked this novel, honestly. I thought it would be light-hearted and fun, but it was more complex and long. The novel was a coming of age story that dealt with things like class, money, and trust in relationships. It was really more of a relationship complicated by royalty than a fairy tale, which I liked. I wasn’t a huge fan of the ending, but it was still good, and I would still recommend it.

The Wife, the Maid, and the Mistress

The Wife, the Maid, and the Mistress

Verdict: An interesting narrative non-fiction piece!

I love narrative non-fiction novels. I don’t want to give anything away, but I loved the way that everything came together in the end. The story was so intriguing, and the fact that it is based on real life, since it seems so fictional, makes it even more sensational!

An Impartial Witness (Bess Crawford #2)

an impartial witness

Verdict: An average second installment of another World War mystery series.

I don’t love and I don’t hate Bess Crawford mysteries. They are pretty vanilla with tons of loop holes. Like, how does this lay person, just a nurse, happen to stumble across so many mysteries and solve them? If I worked for the police, she’d be my suspect!

The Ashford Affair

The Ashford Affair

Verdict: For fans of Kate Morton

I haven’t read a ton of Lauren Willig’s novels, but this particular one should be a hit with Kate Morton fans! I enjoyed it.

classics

Why Shoot the Butler?

why shoot the butler

Verdict: Mystery + Love Story?

I won’t lie, I had higher hopes for this one. As a huge Heyer fan and a huge mystery fan, I thought this would be perfect. However, unlike her Regency novels, which can be downright hysterical, this one was cold and a bit scary. I have another mystery novel that she wrote that is part of a different series (with a different investigator) that I will try out, before I write her mystery novels off all together.

read these

We Never Asked for Wings

if you have time

The Ashford Affair

The Royal We

The Wife, the Maid, and the Mistress

don't bother smaller

The Sisters of Versailles

Everybody Rise

What I Read: Round Up of Monthly Reads

You can read my past monthly round ups:

August 2015
July 2015

June 2015

May 2015

April 2015

Also, you can find other individual book reviews, tips on saving money on Audible books, book recommendations  based on genres and all things related to literature here!

Don’t forget that you can add me as a friend on Goodreads so I can steal ideas on what to read next–or see your ratings, so I know what to stay away from!

Did you read anything good last month? Are you participating in any challenges? What should I be reading? 

Will be linking up with The Modern Mrs. Darcy for Quick-Lit!

 

 

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Categories: Reading, Uncategorized, What I Read Last Month Tags: , ,
Top Ten Tuesday: Most Read Authors!


my top ten most read authors

I’m linking up with Broke and Bookish to list my most read authors (and I’d love to hear your’s!). I’m not sure that these are my most read of all time, but most read recently!

Daphne du Maurier

Rebecca was my favorite novel in high school. Recently, I’ve delved back into more of her novels.

David Baldacci

Well, since I read then entire King and Maxwell series, Baldacci makes it to the top of the list.

georgette heyer

Heyer, who I found recently, has provided me with hours and hours of entertainment while I’ve been sick and unable to sleep.

henry james

I’m not sure why, but I have been reading a ton of Henry James recently. Most of the novels are super long, though!

jacqueline winspear

Since I’m working my way through the Maise Dobbs series, Winspear has made her way to the top of my list!

Jonathan Tropper

I only have one or two more Tropper novels left. I love his stuff!

Michael Connelly

Well, since I read all of the Lincoln Lawyer novels and most of the Harry Bosch novels, Connelly makes the top of the list!

Philippa Gregory

You may be sensing a theme… Since I read the entire Cousins War series, plus a few other Gregory novels, she has risen to the top!

Tana French

After the all 5 Dublin Murder Squad series novels (and I eagerly await more…), again French goes to the top.

Thomas Hardy

Thomas Hardy is one of my favorite novelists, oddly enough. I don’t know why.

William Faulkner

Other than Flannery O’Connor, Faulkner is one of my favorite southern Gothic novelists!

Who are your most read and go-to authors?!

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Categories: Uncategorized
I Never Thought I Would a Write This

**Sorry for the typos – I wrote my post on the WordPress app, using the hunt and peck method, mostly, on my ipad, to fix Siri typos**

I am not writing for sympathy as much as for awareness. I know I lost “followers,” with my last post. This could offend others. But, I write for awareness. If you don’t want to be aware, I understand. Life is more comfortable when you can say something nice here or there and then live a full life. Checking in on your family may be all you can do, so you know about this and don’t want to read about it. I get it. I wish I didn’t 🙂

If you blog, you know Facebook doesn’t share a lot anymore. This was too long for Twitter, but I did want to share it. I once read (I would link if I could find it) that illnesses without a definite endpoint makes people uncomfortable. Things that don’t have a cure make them really anxious to be near.

Hell, I have them and they make me uncomfortable. Not just physically, either, but emotionally. I would rather have something that would end. People don’t bring dinner to people with an indefinite illness. Even families have to move on with their lives and ask you to take Uber or a Taxi, if you aren’t feeling well enough to drive. I understand because people shouldn’t put their lives on hold for something that will never end or could be years before a resolution takes shape.

However, while I wait on another final (and by final diagnosis, I mean even that first appointment since I’m still waiting. I thought it was the obvious thing – an injury, but I  am deteriorating faster than I can be treated. I am in pain that doesn’t match the “obvious.” I am frustrated, but healthcare is trial and error sometimes. Now that my doctors realize that something is not right, I get to wait. And wait some more. Fights of screaming in agony apparently didn’t tip them off.

Today was my first full day using a walker outside of my home. The first time I left the house with it and used it in the store, while my husband really did the shopping. I just needed to leave my prison… I mean house. We needed to pick up something for me to work on my own extra Physical Therapy.

It is already uncomfortable enough to have to use a walker (or wheelchair for some) when you’re young, so when the wife of a minister I respected saw me with my spouse, and she recognized me, did a double take while she was on her phone (so it’s not like I would have even waved hi to embarrass her) and hauled it back to the side of the store she came from it hurts. I am honestly not sure how I stopped my tears from flowing.

Every fear I had about using it came true. Will I ever attend a service again? People who know me could see me and be uncomfortable. Do I want to be the source of that? I try to discuss the lives of the people around me. I try to remember what they like, so I can tell them about a new movie I saw that will be coming out that will fit their interests or if their favorite author is releasing a book. I ask about their race times. Since my husband will be at work, I’ll sit alone. A walker isn’t a friend. I wish it were.

In a culture where health, wealth, beauty, athleticism, and things that are not conveyed by a walker, it makes me hesitant to use it. Yes, it can provide relief to certain body parts. But the emotional toll is huge. I can hurt physically or emotionally. Which is worse? I can’t change anyone’s perceptions. So, do I stay at home?

If I was older, it wouldn’t be so horrifying. It would be an accepted part of getting older. Instead, I’m a social pariah, despite my best attempts. I don’t want special treatment. I just want normal treatment. It’s hard to ignore walking aids, but it’s easy not to run away.

Faith and illness can be fragile, so don’t take any chances. Don’t be unnecessarily hurtful.

People who are horrified by my mere existence as a 27 year old using a walker probably don’t even remember for more than a few minute, but I’ll have to work really hard to forget it along with all of the other pain. I will work on on it, because it is part of getting well. However, I hope that I’ve never done most of the things that leave me crying, although I am sure I have. No one is perfect, but happy Public Service Announcement!

Categories: Uncategorized
Entitled to Compassion


These are my thoughts about telling women to be silent about their suffering without getting professional help to cope with the pain.

Empathy, understanding, love, kindness, goodness, friendship, and a listening ear should all start at the Church. They should come from Christians, firstly. And no matter how you live your life, telling women that talking about their pain without ever explaining if you got professional help is irresponsible. Maybe you read a GREAT book. I don’t know. But, you and Jesus did not work it out on your own.

Shaming women into silence by insinuating that you’re superior because don’t bother other people with your pain is wreckless. Not everyone has had the benefit of professional help to learn to cope. If you don’t have credentials to offer tips, then you might want to back off. I haven’t read a blog in awhile, but I received several upset text messages yesterday. Enough to break my silence.

There is science to back up Cogitative Behavioral Therapy, Dialectic Behavioral Therapy, and other therapies to deal with chronic illness and pain, in addition to treating the illnesses, when possible, but not everyone has the benefit of starting immediately, having transportation, or even realizing that they need help at first. Most of society and the majority of the medical doctors that I’ve seen have never suggested dealing with my pain from a psychological standpoint. It’s a broken healthcare system. So getting on a high horse is kind of… well… just a bitch move.

Some people don’t realize that, diagnoses are hard to find or someone has several issues, so it’s hard to figure out what is going on with the person. Sometimes people continue to develop more issues or their current health conditions leave them open to more problems. [See autoimmune disorders.] The average person with one of my conditions waits 5 years for a diagnoses, and during that time, they can suffer permanent damage to their spine. No matter what, those therapies are coping skills. But guess who is in the position to tell people what to do? Doctors. Guess who isn’t? A blogger. A blogger can talk about their coping skills, share links, do whatever the fuck they want, so someone in pain can find help, but by making other women in pain feel “less than” because they share their pain, they may be less likely to get help. Nothing is more off putting. Think about it.

Personally, if I don’t say something to my family about my symptoms, I tend to forget that I had the symptom. It’s how I cope. I’ve coped with pain from my Tourette’s symptoms like that – by simply forgetting until someone would see me – almost my whole life. I’ll still forget if someone doesn’t say something to me. I’m 27. I can write things down, but when things skyrocket to 12 out of 10 (yes, that’s real), I don’t write. I scream. Don’t worry. I’m not instagraming either, in case anyone was worried.

Sharing your story and the human experience is one thing. In fact, being a gifted writer with a story to share is amazing, but don’t undermine it with statements that are easily misconstrued, misleading, or hateful.

A lot of people function normally. They hold down jobs and use their blogs to raise awareness. They tell their friends about their conditions when the condition will affect their social activities. The end. Who has the right to stop or shame that? It is the prerogative of the person who writes and posts, but still… yuck.

Other people are homebound. Or maybe they work, but they don’t connect with other patients. Some people live in small cities where public transportation and large social activities are not available. Getting sick wasn’t in the plan, so no one decided “hey, I should move to a metro area with a great subway system and good doctors, so I can get around and meet other people!”

But just because someone wants to connect with other patients and tags an instagram photo #spoonie, it does not make them less of a person. It just makes them someone seeking community. I am confused about why anyone would need to belittle a person who wants to find that.

I have the third most common movement disorder in the United States, but I never met another person with Cervical Dystonia in person until I attended a conference in person. Now, I belong to a private facebook group. The group that helps me the most is not the cervical dystonia group, but rather a group of people who have all sorts of disorders (we call ourselves alphabet soup) where we can ask questions from people who have had arthritis for 20 years, or just share a funny story. There is connection there that I won’t ever find in my personal life.

Basically, anyone can write whatever they want, but I still don’t think they should…

Comments are closed because I don’t care about what a single person thinks today. I’m not a professional, but I sure do know a ton about suffering. Sorry for sharing. If that offends you, again, just move on. I’ll post puppy pictures or something about books in a few weeks. I have this “pain” problem.

 

 

Categories: Uncategorized
It’s That Time Again…


Well, in the past I used to write some extra blog posts to keep this thing going when my neck started to hurt a few weeks before the shots that I get for my neck every quarter.

That didn’t happen this time because I could barely keep up with my current posting schedule. I’ll be around, but due to the pain in my neck and shoulder, I don’t know that I’ll get to write much. I have limited energy, which was completely conserved during my December shots because I was bedridden. I still don’t have much energy to work with, but it will go to doctors appointments, helping my family help me, and dealing with all of the other life circumstances that accompany chronic pain and illness that people really don’t understand unless they have it or care for someone who does .

I hope you’ll you be back to read more in May when I can write again. Maybe I’ll get to throw a post or two up because blogging is a hobby that I truly enjoy. I have whole list lf ideas for posts, but even drafting something seems out of reach.

(Don’t worry: I’ll be keeping up with my “What I Read: April” post! It will probably be long because I’ll have plenty of time to listen to audiobooks.)

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That’s all, folks!

 

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Categories: Uncategorized