Why I Publish Non-Dystonia Posts


So, I’ve been reflecting on why I blog. When I started blogging, I wrote a lot of reflective essays. My goal for my blog was to raise awareness for all types of dystonia, but specifically to connect with Cervical Dystonia patients. I had no idea where it was going to take me. A year ago, I never thought that it would look like it does now.

Eventually, though, I changed how and what I wrote, so that more people would read my blog. I was willing to do that because I really wanted to raise awareness for dystonia. I didn’t write paragraphs upon paragraphs anymore. I would take an essay and break it into a list. Instead of a thesis addressed by paragraphs of writing, I would “defend my thesis,” so to speak, with easy to follow bullets. I started to understand how visual people are, so I had to break things down into a few sentences at a time, which ruined my favorite part of writing – my own, unique voice and point of view.

Why I write a full lifestyle blog, instead of a singly focused Dystonia blog.

In fact, this post originally had a different title and went well over 1,000 words. So, I decided to split it into two posts and provide you with these handy bullet points. [If I could have made this a DIY post, I would have 🙂 .]

Why I Still Publish Non-Dystonia Posts:

  • There are other blogs about dystonia, but there aren’t many, especially those offering any tips that are derived from personal experience. Yet, I belong to a private Facebook group with over 2000 members who all have cervival dystonia, which is only one type of dystonia. I knew there was a void of personal experiences, and I could fill it by writing what I wanted to read when I first got diagnosed. So, I made concessions in my writing style to bring in more traffic. Traffic means that my site will be seen and noticed. In fact, I’ve had posts get picked up by Healthcare Advocacy organizations.
  • If you saw my Instagram post from Monday, you can see why I am going to continue to blog and put out the content that people want to read, in addition to the content related to dystonia. More people than just people with dystonia are suffering, so I at least want to offer a common experience, a listening ear, and maybe connect with them about some other interest because it’s miserable to think about your pain all of the time.
  • Blogging is fun because I’ve learned about photography! I am learning to play around with graphic design, which is something that I never thought that I would touch. I have always liked to paint and write, but I never thought of myself as creative until now.
  • I’ve read more blogs and learned more about different lives and viewpoints than I would have by living in my own bubble, here in South Carolina. It’s also amazing how much we all have in common, too. The human experience is amazing.
  • Blogging has made me more creative. I have more discussions. Real life conversations become blog posts.
  • Blog friends. You know who you are.

More to follow!

contact me dystonia

Please note that comments with links that are not relevant to the discussion will not be approved. Personal signatures with blog URLs will be deleted. Please use the Disqus profile to add your blog’s URL, so that I can find you.

Categories: blogging, Cervical Dystonia, life thoughts | Tags: , , , |